My 35th Birthday Wish for CHEO Kids!
My 35th birthday is April 25th and I’m hoping you’ll give a gift to a child in treatment at the Children’s Hospital of Eastern Ontario aka CHEO to help me celebrate. We’ve been doing this since 2018 and my goal for 2021 is to hit $5,000. Will you help?
Please give a gift to a child in treatment at the Children’s Hospital of Eastern Ontario this April.
If you’re in my family or friend circle and you’d typically treat ME for my birthday, the best gift I could receive that really lets me know that you’re thinking of me comes in the form of a financial donation to CHEO’s Child Life department.
All proceeds go to providing a child (ages 0-18) in hospital with a new toy, game, book, art supply kit and other forms of entertainment (escape) while undergoing treatment.
In previous years, you’ve been able to swing by the radio station or a tour, a chat and a photo (sometimes even a hug or a hi-5). Unfortunately, in person donations are postponed until we can all safely gather again.
Here are some photos from my Birthday Wish:
To be totally transparent, this fundraiser is ongoing. I started it in 2018 and promote it every year during my birth month (April). I want to make it as financially accessible as possible for those who wish to give a gift to a child who could use the distraction. In my personal experience as a CHEO Kid (which runs deep; from 1988 to 2003), many children who spend a large amount of time as ‘in patients’ (receiving treatment that requires them to essentially live in a hospital room) don’t have a lot of options in terms of NEW gifts, books, toys that are JUST for them. Many come from socioeconomically challenged or disadvantaged homes and YOUR generosity makes a massive, life changing impact.
As I age, the urgency to let children with rare diseases or crummy circumstances know that there is hope for a brighter future rises. If I was a millionaire and able to donate in a massive way, I’d probably still be asking you to contribute to the Child Life Department because awareness and acceptance is part of the giving process.
I have spoken about my disease in detail before but if you have any questions that aren’t answered in these posts below, please feel free to reach out.
Here’s a recent video I created to explain Autoimmune Diseases in an easy to understand way:
Life, Death and Everything in Between: My Autoimmune Perspective
The anniversary of Glenn Frey's death from Rheumatoid Arthritis complications is mildly triggering to me. RA is serious and the drugs to treat is are equally serious. It's a high-wire act to stay healthy while knowing your life will likely be shorter than it should be.
It's paramount to do your best to take care of your body; in sickness and health. Make decisions that work for you. I'm on the CRAZIEST drugs ever after failing: methotrexate, leflunomide, sulfasalazine, Plaquenil, naproxen, ketoprofen, cortisone, hydrocortisone, Imuran, prednisone, ciclosporin & the fringe drugs to treat reflux, anemia, various deficiencies, nausea from chemo, insomnia, headaches. My internal organs (+blood) are at risk to damage the way my physical bones and joints are. I had my first joint replacement surgery at 17 which is why I missed my final high school exams and flunked out (graduated college no problem though).
I'm now on Enbrel and you can google how wild *that* is. I'm accepting that risk to live a 'normal life'. I've been on it for 20 years this spring. I've got two healthy kids with my college crush and work as a rock n roll DJ in Ottawa, Canada.
Life is good. It's been hard but the hardships have shaped me. They've allowed me to have a perspective on life, death and everything in between that most people do not get (at least at such a young age).
To summarize: your life and experiences are unique. Maybe you'll live to 100... 120, maybe! Maybe you won't. What matters is how you approach your life and how you treat others along the way. Never, ever, ever take any of this for granted because tomorrow isn't guaranteed.