Recovery

Oh, hi.

I decided I’d start a new blog for my recovery. If you missed the memo, I had a total hip replacement earlier this month.

So. How am I?

Rough. I’m rough. It’s a painful thing! I know it’s temporary. I know I will be better than OK when I have recovered but I’m still working on it. I’m getting used to a new structure. I’ve never had a healthy joint. How one of my surgeons explained it to me at my 2 week check-up:

“With arthritis, the joint forms as a T. With a healthy hip, the joint is more of a ⊢.” The doctor also went on to explain that the reason my leg feels a bit foreign (and sore) is because three muscles were interfered with during the operation and all of them were stretched to accommodate a proper, healthy joint structure.

Leg length discrepancy is a potential complication with a total hip replacement and I was initially worried about that. Now that I’m three weeks into my recovery, my worries are fading. I know my legs are a similar length and there is no complication there. It is a sensory trick my mind is playing on me because my muscles have been stretched.

It’s a weird feeling, feeling like I’ve been doing yoga or working out all day when I have literally been a slug! Why do my muscles feel like they’ve had a good workout? Because they have. They’ve been pulled. They’re getting used to this new, healthy structure the same way the rest of my body (including my brain) is!

I am very happy with the care I received at the Ottawa Hospital (General). I am grateful for the support I’ve received from my community! I am learning (always learning) that a total hip replacement in a hip like mine with 35 years of arthritis (OA and RA) and dysplasia means a harder recovery; a different path.

Everyone’s body is different and our abilities range. I’m thankful for all that my body has been able to do over the years, in spite of some difficult circumstances. This new hip takes away my extreme pain caused by the disease so what I have to deal with now, in the relatively ‘short term’, is recovering from the procedure. I will adapt to this new structure and I’m so excited to have a healthy joint!

I shared the image (above) recently to show off my scar. This was taken after my 2 week post op check-up where I had my staples removed. This bandage hides a large scar, where the joint went in. I shared it because I want people to see and understand that joint replacement surgeries happen to everyone at all points of life. The overrepresentation of my disease as something that only affects seniors is a huge disservice to all those who are diagnosed at a young age. I was 18 months old, so perhaps I was even born with it? I grew up with the disease AND learning how to navigate peoples ignorance.

Today, I am honoured to share my story with anyone who will listen. There are young people out there wondering what arthritis looks like OR how medical intervention can help OR what to expect with a total joint replacement. I want to be here for you and I hope sharing my experience(s) helps.

Summer's End

Fresh off of updating my Moto Camping blog post, I thought I’d write a little something else. A general update for those who follow me.

Had a positive appointment with my quasi-new (to me) rheumatologist. She is wonderful. My disease is still under control thanks to the drugs (almost 22 years on them, totaling approx. 2.2k injections and counting) and my x-rays indicate that my total hip replacement should take away my pain. She encouraged me to call both of my surgeons (foot one at Civic campus, hip one at General) to ask where I am in the surgical cue and to also ask about getting steroid injections to help keep the pain manageable until corrective surgery happens.

Unfortunately, I couldn’t get through to the foot surgeon. That’s okay, my hip is the bigger issue. I was able to reach his office. That’s when I was informed that I am not in the surgical cue after-all. Some paperwork was needed and never issued due to the hospital’s on-again-off-again lockdown orders. The surgeon had issued me a standing order which exists in my online chart. They have ordered updated x-rays in prep for the surgery back in January. I strongly believed that I was in the cue and was hoping for a replacement this winter… Alas, Module O at the Ottawa Hospital did not push the papers needed to actually book me the procedure. I will be speaking with my surgeon in early September. I’m very hopeful that we can get this sorted. The time has come and though I am scared, I know that my quality life will drastically improve post-op.

These last two weeks have been particularly hard. I generally keep a positive attitude as I have been disabled my whole life. I am very used to pain, fatigue and the sometimes isolating thoughts that come with being chronically ill. To combat the mental lows, I’ve been forcing myself to do fun stuff with friends. That has been keeping me in a positive headspace, for sure. I’ve been super social and having a great time there, no problem. A side effect of that, however, is that it’s left me pretty drained physically so I am laying low this week.

Work is going well. I do find the stairs difficult to use but as long as I take my time, they remain manageable. I love my job and appreciate the ability to work from home when I need to. Haven’t faced too much negative feedback or ‘trolling’ lately but maybe I’m just getting better at ignoring it? There are difficult days where I like to just keep it basic: play music & talk briefly about light stuff in between said music. I am noticing a lot of nasty stuff on social media directed at other public figures/those working in media (radio, tv, digital) and I struggle with trying to find a purpose for that hate filled vitriol.

Is it to be edgy? Is it for likes? Is it for online clout? Does shaming someone for doing their job make others feel better about their life? Do they know they don’t have to listen/read/consume what the object of their hate is saying/writing/producing?

I just don’t get it. I guess the point is to maybe create division so we have a big ‘us against them’ moment but what’s the goal there? It’s tiresome going down that rabbit hole and those are just some of the thoughts I’ve had based on the more coherent things I’ve seen. Then there are the messages that make zero sense which act more as a flare, drawing attention to a severe mental health situation. Overall in my world, I’d say the vibe has been fairly positive.

My cottage rental season is winding down as we inch toward winter. Typically, we shut the cabin down mid-to-late October but with the new water system we had installed this year we may get more time in before the freeze. At the mercy of Mother Nature with that one, but some of my favourite moments there happen during the ‘off season’. Another great year hosting friends and family. Looking forward to doing it again in 2023. Due to some pretty big expenses (exterminator, well/pump replacement, new chimney, new BBQ, may need a new fridge) I am hoping to get more pop-up guests later into this season/early in the next if the weather permits. Cottage ownership is as expensive as it is wonderful.

I never find enough time to write. I mean, I should be exercising right now but after only 13 minutes I had to stop. This week it’s about listening to my body. Who knows what next week will bring?