Amy Volume's BIRTHDAY WISH - Year 4!
Help me celebrate my birthday by giving a gift to a child receiving in patient treatment at CHEO (Children’s Hospital of Eastern Ontario). All proceeds go directly to CHEO’s Child Life department who provide kids with wonderful and much needed distractions in many forms: books, toys, craft kits and other forms of entertainment.
I’m turning 36 on April 25th (woah!) - help me celebrate by buying a gift for a kid receiving in patient treatment at the Children’s Hospital of Eastern Ontario, aka CHEO! All money raised goes to CHEO’s Child Life fund and you can learn more about the fund by CLICKING HERE.
Launched in 2019, we’ve raised $5,000.00 and I”m hoping to add another $2,500.00 in 2022. This is a mighty ambitious goal but, as long as I have a birthday, I’ll keep trying to provide entertainment and levity to those who deserve it most: kids in hospital.
This cause is very important to me. I am a CHEO kid. I spend a lot of my childhood in hospital, diagnosed with rheumatoid arthritis at eighteen months (1988) it was Sick Kids in Toronto until CHEO built their own Rheumatology Clinic (which I believe is the Infectious Diseases clinic in today’s terms).
As you can imagine, I missed a lot of school - never did make it on to any teams (sporting, social or otherwise) - in fact, I missed my own highschool graduation due to joint fusion surgery.
When you’re little and in need of a smile, CHEO’s Child Life department delivers. Please consider giving a gift to a child to help me celebrate my birthday. This fundraising effort is ongoing, year round. If you cannot donate at this time, there is no pressure! There are no deadlines! I just ‘get loud’ about it every April because that’s when I celebrate my birthday.
Help me celebrate by making a financial donation OR by buying a gift from my Wish List (will be delivered to my work address and brought to CHEO by me):
The photo above this text is of me delivering gifts & money to CHEO. This was my first year buggin’ you for donations. If you consider the average gift costing $25, to date, we have collectively given over 200 gifts to kids (aged 0-18) receiving in patient treatment at CHEO.
My 35th Birthday Wish for CHEO Kids!
My 35th birthday is April 25th and I’m hoping you’ll give a gift to a child in treatment at the Children’s Hospital of Eastern Ontario aka CHEO to help me celebrate. We’ve been doing this since 2018 and my goal for 2021 is to hit $5,000. Will you help?
Please give a gift to a child in treatment at the Children’s Hospital of Eastern Ontario this April.
If you’re in my family or friend circle and you’d typically treat ME for my birthday, the best gift I could receive that really lets me know that you’re thinking of me comes in the form of a financial donation to CHEO’s Child Life department.
All proceeds go to providing a child (ages 0-18) in hospital with a new toy, game, book, art supply kit and other forms of entertainment (escape) while undergoing treatment.
In previous years, you’ve been able to swing by the radio station or a tour, a chat and a photo (sometimes even a hug or a hi-5). Unfortunately, in person donations are postponed until we can all safely gather again.
Here are some photos from my Birthday Wish:
To be totally transparent, this fundraiser is ongoing. I started it in 2018 and promote it every year during my birth month (April). I want to make it as financially accessible as possible for those who wish to give a gift to a child who could use the distraction. In my personal experience as a CHEO Kid (which runs deep; from 1988 to 2003), many children who spend a large amount of time as ‘in patients’ (receiving treatment that requires them to essentially live in a hospital room) don’t have a lot of options in terms of NEW gifts, books, toys that are JUST for them. Many come from socioeconomically challenged or disadvantaged homes and YOUR generosity makes a massive, life changing impact.
As I age, the urgency to let children with rare diseases or crummy circumstances know that there is hope for a brighter future rises. If I was a millionaire and able to donate in a massive way, I’d probably still be asking you to contribute to the Child Life Department because awareness and acceptance is part of the giving process.
I have spoken about my disease in detail before but if you have any questions that aren’t answered in these posts below, please feel free to reach out.
Here’s a recent video I created to explain Autoimmune Diseases in an easy to understand way:
Life, Death and Everything in Between: My Autoimmune Perspective
The anniversary of Glenn Frey's death from Rheumatoid Arthritis complications is mildly triggering to me. RA is serious and the drugs to treat is are equally serious. It's a high-wire act to stay healthy while knowing your life will likely be shorter than it should be.
It's paramount to do your best to take care of your body; in sickness and health. Make decisions that work for you. I'm on the CRAZIEST drugs ever after failing: methotrexate, leflunomide, sulfasalazine, Plaquenil, naproxen, ketoprofen, cortisone, hydrocortisone, Imuran, prednisone, ciclosporin & the fringe drugs to treat reflux, anemia, various deficiencies, nausea from chemo, insomnia, headaches. My internal organs (+blood) are at risk to damage the way my physical bones and joints are. I had my first joint replacement surgery at 17 which is why I missed my final high school exams and flunked out (graduated college no problem though).
I'm now on Enbrel and you can google how wild *that* is. I'm accepting that risk to live a 'normal life'. I've been on it for 20 years this spring. I've got two healthy kids with my college crush and work as a rock n roll DJ in Ottawa, Canada.
Life is good. It's been hard but the hardships have shaped me. They've allowed me to have a perspective on life, death and everything in between that most people do not get (at least at such a young age).
To summarize: your life and experiences are unique. Maybe you'll live to 100... 120, maybe! Maybe you won't. What matters is how you approach your life and how you treat others along the way. Never, ever, ever take any of this for granted because tomorrow isn't guaranteed.
CHEO unveils new Minto Dream Home
Visit CHEO's official Dream of a Lifetime site via dreamofalifetime.ca.
via @SandraKiss1053
This year's dream home is located at 540 Bridgeport Ave. in Manotick. It is a major part of their Grand Prize (in addition to: $100k cash, a new car, maid service, groceries and more) valued at over $1.6 million!
Tickets for the CHEO Dream of a Lifetime Lottery are $100 each or three for $250.
For MORE pictures, click on over to the Ottawa Citizen's > Photos: 2016 CHEO Dream Home for a comprehensive & gorgeous gallery.