Hip Surgery at 37 Years Old
My arthritic/dysplastic hip had a good run but now, it’s time to get an upgrade. At 37 years old, I’ve had a total hip replacement at the Ottawa Hospital (General) and this is my story from one week pre-op to the main event and recovery process. It’s updated regularly. Hoping to share my experience for others who find themselves on a similar path.
FOR THE LATEST UPDATES ON MY PROCEDURE AND RECOVERY, SCROLL DOWN.
WEDNESDAY, MAY 3
8:30 I’m killing time while waiting on a Zoom call from Anesthesia… I will 100% be late for my radio show today (which is on CHEZ 106, weekdays 9A to 2P).
This post will be updated, so bookmark and/or check back often for new content! NOTE: This is all my experience, in my words, from my life. I’ve just turned 37 and will be having a total hip replacement (total arthroplasty, microport, anterior approach) next Tuesday at the General.
CONTEXT: I have been living with seropositive rheumatoid arthritis since 1988 and my body is worn out. The pain is something I’ve written about before:
11:13 Phone call with the pre-admissions Nurse was great. The support staff involved in my upcoming have been a pleasure to deal with. Today I learned that drinking 3 mini-cans of Ginger Ale the night before & in the early morning the day of my surgery might help me heal! That would have been an interesting study to be a part of, eh?
It’s been a while since I’ve had a big operation, C-Sections aside. Sounds like many things have changed. Might be having a spinal block for the operation, which is comforting. I find GA and IVs the most anxiety inducing parts of any type of surgery.
19:35 I’m having trouble focusing on normal work related tasks when I’m not in the office/at the station. I’ve been really draggin’ in the productivity department. I had my routine bloodwork done for an apt. with my GP about non-hip related health concerns (my mouth/face rash situation) and just had more done this afternoon for pre-op reasons at the Civic hospital. Looks like my hemoglobin and neutrophils are Low (again) which is no surprise to me. Hopefully it won’t interfere with my operation.
Tomorrow I start Celebrex to help with pain and inflammation. I had to stop my Enbrel. Saturday I start Pregabalin.
I have also been calling my insurance company a lot to determine what rehab items are covered and how to file a proper claim.
Pre-hab apts are Monday after my radio show and have been ongoing for four weeks - I will obviously have to take some time off to heal before diving back in and rebuilding my strength.
My husband and I also had to settle two separate (and large) mortgage deals (which is a stressful privilege) and open the cottage early as I’ll be out of commission for our typical opening weekend (May 24). Our youngest has dance classes every week and our oldest has tests and a school play to prep for. The internet was out for a couple days because the squirrels ate through the lines, so that was an interesting trouble call.
I am tired. Very tired. I am physically tired and mentally drained.
I am committed to ‘showing up’ at work. I’ve been sick my whole life and I don’t like to let people down. I also don’t like to underperform because of my disease; it is not an excuse and I don’t ever want it to be.
Just having a very hard time staying focused which turns a five minute task into a 50 minute task, etc
THURSDAY, MAY 4
10:43 Received my second info package via e-mail regarding resources for post op care and rehab. 99% of the materials in this package are specifically for senior citizens. I am 37 and this stuff is mentally tough… Hard to focus on work and hosting a 5 hour radio show but there it is.
FRIDAY, MAY 5
19:46 Got to the station early this morning to accommodate an 8:30 phone apt. with a physiotherapist to go over any questions regarding post op restrictions and rehab. The call was very brief. Since my procedure is the anterior approach, I have only two movement restrictions immediately following surgery.
The six week recovery period is to ensure the bone grows around the metal, cementing it in place. Any overdoing it could result in dislocation (barf).
I will be able to use crutches afterall. I’d been told I needed to use a walker (the two wheel, two leg type). Due to my age and fitness level, crutches are preferred but, I’m learning, it kinda depends on who ya ask.
Tomorrow I start the pregabalin for anxiety and nerve pain. That means tonight is my last night to have a drink to “cheers” my busted hip. It has served me well.
If you are reading this, make sure you take some time to appreciate your body and all that it has done for you. Even if it hasn’t been all sunshine and roses.
MONDAY, MAY 8
10:39 Well this was a very pleasant surprise at work today. Hope you caught some of this on CHEZ 106 - also hope you like the Tragically Hip! :)
(My fellow DJs recorded ‘Get well soon’ audio bits which were peppered throughout my radio show today.)
11:53 So many nice messages of support coming through on the radio station text line. I feel the love today! Thank you Ottawa & beyond. I am constantly checking my Ottawa Hospital - My Chart website for any updates on the procedure and I now know the exact beast that will be my new hip… but does it come in black?
Total Hip Arthroplasy, taperloc complete hip system via Zimmer Biotmet US
TUESDAY, MAY 9
SURGERY DAY
9:05 Since I’m not on air today, I was able to walk my kids to school and watch my oldest sing O Canada with the school before they start their day. I might not be able to do that for a little while, so that was nice. I also received a call from the hospital on my way back home, asking if I could come in earlier due to a change in todays OR schedule.
I’ll be heading in soon! I hope I have the chance to update this blog in stages. But if it so happens that they see me right away and I can’t have my phone - so be it!
Yesterday afternoon, I was contacted by my surgeons office about three research studies I am a good candidate for. Naturally, I agreed to all three. I can’t stress how important it is to be a Lab Rat, if given the chance. I get to play a part in solving health problems and I think that’s so exciting. I agreed to go into the hospital earlier, as yesterday’s surgery time was 2:10PM… so I’ll be in even earlier per this latest phone call - I hope the research team is aware of the change because I believe this stuff is critically important. I’ve been sick for a long time and it’s my hope that future RA kids don’t have to experience the type of pain that I did and do.
I was able to assemble my crutches and get my ice machine going. I’m excited for today. I know it will be painful but the pain I had been living with (without cortisone) was eroding my quality of life.
I feel very blessed and privileged to be going into todays surgery with so much love and support.
I’m writing this from my elliptical machine because every minute counts! I will keep this page updated as I am able.
17:39 Operation was awesome. Success story, so far. In recovery now and it will be an intense few days. I’ll write more when i feel up to it.
Thx for the love and support.
20:26 On my way home now. Feeling good! Taking drugs as needed though (& following a schedule) to get me over the immense pain hump. I wanna stay on top of it because, sometimes, you can get to a point of no return when it comes to pain.
I have a weird sensation that my operated leg is WAY too long but I hear that’s normal. Man, I’ve been disabled for so long & my hip grew improperly that this new way of living is going to take some getting used to!
Thank you for all your well wishes and messages of support and love. I may or may not write you back, as I’m sure you’ll understand: I’m gonna be on DRUGS and a bit busy with recovery!
WEDNESDAY, MAY 10
DAY 1 POST OP
8:31 Yesterday went even better than I could have hoped. All staff were phenomenal and I’d like to give a special shoutout to my Daycare Nurse, Chantal. From start to finish, everyone was remarkable. Being surrounded by positive people aides in a patient’s overall wellbeing, I strongly believe that.
Where to begin… well, if you’ve been following this blog, you’ll know that I was called in extra early so that did throw off some of my research/lab rat duties. I kept telling everyone: “I’m in three studies! You need to make sure they know where to find me! I’m supposed to meet someone at Module X at 11:30!” etc. Even during my operation, I hollered, “Make sure research gets my bones! I promised them they could have them!”
The IV going in was no sweat, though it was one of the first things I asked to be removed after my procedure. Naturally, I had to keep it for a few hours until I met some criteria (walk and do some stairs).
Anesthesia was the very best. I had no issues with the spinal block and got a little woozy in the OR. Because I was awake during the procedure, I was able to voice my ‘woozy’ concerns and they fixed me right up. I swear to GOD I heard ‘Courage’ by the Tragically Hip playing for a while but I might have just been high as a kite. We will never know… haha.
The entire team were a bunch of beauties. It’s a bit jarring to be hoisted up and locked into this stirrups, reminiscent of ski boots. It’s also mildly jarring to hear the saws, drills and hammers but I felt no pain and I enjoyed shooting the breeze with my team.
The whole thing was estimated to take up to 90 minutes and wound up being closer to 45. Wild, eh? I was up and walking in no time, on crutches of course, and even did a small set of stairs. The good thing about being physically disabled for so long is that my good leg knows exactly what to do to help the bad one. It won’t be bad for long! I’ll get my strength back up soon. Today, though, I’m just letting it rest a bit and focusing on pain management and swelling.
I’ll be convalescing at my folks place for a few days and will do my best to keep you updated. I think it’s important to write about this experience as it’s not terribly common for someone my age (37) to go through a total hip replacement. I want to document my experiences to help others.
Ciao for now!
17:40 Oof - ass is being KICKED tonight. Nurse called me and explained that the second day (or today, which I consider the first) is typically the worst. The inner tissue feeling is coming back. As you might imagine, removing bone and hammering a pike into one’s femur doesn’t feel like sunshine and roses.
My focus right now is to control the swelling with my ice machine. I’ve set up a Google voice command to turn it on and off in 15 minute intervals. Have I told you lately how much I love smart home devices? If there is a disabled person in your world, I highly recommend helping them get set up with smart lights and voice commands.
I have a very mild fever and am definitely feeling the pain but I know it is all worth it. I’ll continue to exercise as I am able and increase intensity as I am able.
THURSDAY, MAY 11
DAY 2 POST OP
Ouch. OUCH. I’m taking it slow in terms of the exercises. Some are easy-breezy and others are like I’m a baby learning how to move again (while people poke me with hot knives). The pain is manageable and just a result of the operation itself. Muscle tissue and nerves are moved and sometimes cut (and stitched back together, of course), which causes a lot of pain when trying to do simple movements. My daycare nurse called me yesterday to ask how I was doing and she told me not to push through the pain with the exercises and to do what felt ok/didn’t cause pain.
I am wondering if this is normal and if other’s go through the feelings I’m feeling, like: Will I ever move normally again? Will my leg length be mismatched? When does the pain stop?
I have to remind myself that it’s only been two days. If you want to google the surgery, it was a Total Hip Arthroplasty, Anterior Approach… I accidentally googled it and WHOA MAMMA! You see that stuff and you think, “Ok, yeah, that’s gonna sting for a bit.”
This pain is normal and these questions will answer themselves in time. Not everyone has the same experience, either. We may have had the same procedure but not the same path to recovery and that is okay.
I did my prehab and was in good shape going into the operation, so I think I’m just struggling with the loss of muscle strength and ability I had built up prior to. I know I will be back and better than ever… again, we’re only at Day 2!
12:50 Feeling better & went for a walk outside. It’s very clear why doctors advise not to return to work/normal activity for 6 to 8 weeks. The joint feels good but I really don’t have any semblance of normal or even below average movement at this time. It’ll be six weeks for the bone to grow account the “ball and socket” pieces, cementing them in their permanent place. Any wrong move could jeopardize their (proper) placement.
I’m keeping the loopy drugs for nighttime but Tylenol, Celebrex and Pregabalin are my BFFs during the day. The Pregabalin makes me pretty drowsy - so I am doing my best to avoid making wacky or impulsive decisions (staying away from online shopping, haha).
Following my walk, I had some lunch and am going to use my ice machine for the next few hours; on 15 minutes, off 15 minutes.
19:06 Exercise 6 is killing me. I can’t easily slide my leg out and back in. It’s kinda freaking me out that I can do some of the more complicated tasks (which they ask you to do immediately post op/in hospital) but I can’t do this easier one which the physiotherapist assigned?
Ugh! Limitations are fine and I can accept that it will take a while because my muscles were stretched and some were cut. I will keep working at if. Tomorrow’s a new day!
FRIDAY, MAY 12
Day 3 post op
7:39 Had another good sleep but woke up in quite a bit of pain. I’ll try to get that under control without bungling up my medications. My drug schedule looks like this:
Some don’t play nicely together so I have to keep an eye on the clock and make sure everything gets taken in a spaced out manner.
I hope the Tylenol kicks in soon… ouch! I spoke with another new hip recipient about the tricks exercise and they told me that they were not advised to do that one until week two, so I’ve decided to give it a rest until it comes more naturally. I don’t want to do any harm to my new joint.
I have not been able to properly use the bathroom (if you catch my drift) since before my operation. I’m told this is a normal side effect from the opiates and have been taking something to help… it just hasn’t helped yet and my stomach is not happy about it.
All of the pain and inconvenience will be worth it, in the end. There is just no way to get to the end but to go through it. There are not Fast Forward options in life. As I go through this, I’ll do my best to keep you updated on my progress. Hopefully this blog will help others who have total hip replacements learn about recovery and what to expect. I realize that every body is different so I can only speak from my experience.
18:22 Thanks for following these updates. I feel it important to once again say that each body will experience surgery and recovery differently. I have a lot of hope and realize that there is light at the end of the tunnel. I’ve been avoiding taking the heavy duty pain meds but that is a mistake I have made before. I should know better. It has been explained to me by my GP that, due to my disease and drug history, I have a higher tolerance to pain meds. Essentially, I need stronger stuff to scratch the surface of said pain. I always try to go with regular strength stuff - but I’m going to try to remember to take the heavy stuff as needed. That’s what it’s there for. Even if it makes me a little more oogly-woogly than usual, haha.
SATURDAY, MAY 13
Day 4 post op
19:56 Oof. It’s not a walk in the park BUT today reminds me that it’s all going to get better. I need to slow down and TaKe ThE dRuGs.
I spooked myself by taking one of the BIG drugs close to another BIG(ish) drug and lost my vision for a minute (dizzy). So I’ve been really, really spacing them out which is difficult because I am legitimately prescribed a number of post op drugs that I need to take every day (some are wrapping up soon, thank goodness).
I’m walking outside with my crutches but not going very far at all. I am excelling with my exercises (almost pain free). By the time I see Dr. Beaule again (May 26), I should be in much better shape.
Sorry that i didn’t post much today. Ryan (my husband) and our kids came last night and are staying through the weekend. I had planned to go back to the city with them tomorrow but I think I might stay here til mid week. I’m not much help with the kids at this time. Very lucky to have the support I do.
22:16 Sharing WAY too much with this pre-bed update (no, I’m not on the BIG drugs yet, hahah): cannot properly “go to the bathroom” still. I’ve been eating normally and drinking Restoralax every day post op but - yeah… still working on that. It’s a side quest. If you have to take BIG drugs, have a plan for your bowels! Trust me.
SUNDAY, MAY 14
DAY 5 post op
Today I was able to remove my bandage. This scar is pretty intense so I’ll add it to this blog later as a link you have to CLICK ON to see (something I can’t do from my phone). I don’t wanna just embed it here… it’s something you have to WANT to see, haha.
Exercises are getting easier and more pain free. Movement still requires double crutches and will for a while. Operated leg still fees longer but I’m not as worried about that.
My arthritis pain is gone. The surgeon’s job is done! I can focus on healing and get back to enjoying life soon enough.
I’ll keep this page updated with anything noteworthy but, in the immortal words of Bryan Adams, “so far, so good.” (That was the title of his album containing the cancon banger, Summer of ‘69.)
Tuesday, May 16
Day 7 post op
10:09 Everything sucks and I’m dying! Ok - a bit dramatic… I’ve been waking up with very intense headaches for the past three days so yeah, that is the theme of the morning. By this time, I’m feeling much better. I think some things still suck, but I’m getting better matches my 10AM mood… haha.
The first week, post hip surgery has been an uphill battle (with one good leg). My left leg has been a hero and I imagine I look like the Hulk on one side and a skeleton on the right! It’s amazing what our bodies can go through and how they heal. I am very impressed and in awe of what will be a new lease on life with the arthritis pain now gone from my operated area.
But if I’m being honest: the first week sucked. It sucked, big time. If you’re heading into a total hip operation, in my experience - be prepared. Have a care plan. Don’t do exercises that really hurt (even if you’re told to start them right away). Listen to your body because it will tell you what is OK and what isn’t.
I’m walking better. My leg length situation is feeling better. I have less “stabbing nerve pain” when moving/putting weight on my new joint. I can now do all of the exercises (pictured above), mostly with ease.
Everything is getting better but it also is allowed to suck/hurt/be not okay.
In preparation for this surgery, many people told me: “You’ll be pain free!” Feel free to add “but not right after. Right after, it’s going to suck a lot” from me.
Again, this is ALL my opinion based on what I’m living. None of this pain has been permanent. I am in recovery and it’ll be one full week by 1pm today… what my body is doing (while still functioning with autoimmune sickness which will never cease) is truly remarkable.
THURSDAY, MAY 18
Day 9 post op
Feeling the pain in my scar/operated region. Healing happens from the outside in. While I look quite good - there is much healing to be done below the surface and it’s taking a lot from my, energy levels wise.
I have been contributing to work on a programming basis (started that on Monday). While I am not hosting my typical five hour solo, daily radio show, I am putting effort into helping create this weekend’s specialty playlists. This could be zapping my energy but I want to contribute what I can. If I can sit around all day watching TV, I can surely do some work?
My morning headaches are still happening. At least they go away by mid morning. I have finished much of my prescribed meds which allows me to take my pain medicine with less time-based restrictions (little victories!).
As promised: CLICK HERE to see my scar! Only click if you’re ready to see it though because once seen, it can’t be UNSEEN.
SATURDAY, MAY 20
Day 11 post op
I’m back in Ottawa & on air tonight (with CHEZ 106). I am still in Phase 1 of recovery mode which includes a lot of pain, swelling, meds & ice machine in 15 minute intervals (that’s what I’m wearing in the picture). I have very basic physio exercises, which are all now do-able and fairly pain free (not the case last week).
My next apt at the Hospital is Friday to see my surgeon for a progress report and have my stitches removed. If I can enter the next phase of recovery, I think I can resume my arthritis medicine (which will really help me feel 100%), get back to physio with my therapist (in person) and drop down to one crutch.
Hip surgery hurts more the younger you have it done. In my case, it was the only option and I will choose THIS recovery pain (& maybe a bit of a longer leg 😂) over the arthritis pain EVERY TIME.
While the recovery is a grind and the days feel long and exhausting (I’m waking up every four hours for meds) - it’s temporary. I will overcome this. I will heal. I almost cannot believe that I WILL be pain free in my hip. It just doesn’t compute in my brain as a reality right now.
Thanks for your positive notes! I hope you have a great long weekend - do something nice for your body. :)
Friday, May 26
Day 17 post op
Just returned from having my staples removed. Wound healed up very well. I have a bit of suspected fluid buildup when I engage in activity towards the lower part of my scar but it goes away when I give it a rest and should go away over time. It’s not leaking and my leg looks great!
The surgeon who saw me today was in on my operation. It was nice to be able to see the Dr’s face as when I’m in the OR I don’t have contacts in or glasses on so everyone is always a blur but I recognized his voice. He told me that my XRays looked good and encouraged me to get back into physio ASAP and that it was safe to reacquaint myself with the elliptical machine. I haven’t worked out since right before my operation so I’m pretty stoked to start that up again.
The reason I am having a rough time physically and with pain management is because three muscles were interfered with (cut, stretched and/or moved). My hip has never formed properly, so I was walking my entire life in an abnormal way. Now I need to adapt and strengthen these muscles and tendons to allow me to learn how to walk with a healthy hip. Also have to be mindful that my left hip has formed in the same abnormal way, it just was not as bad as my right. The writing is on the wall for my left hip, but I won’t pursue surgery until my quality of life suffers (like what happened with ol’ righty over here).
My leg feeling longer than my non-op leg is also very normal and a feeling that will probably go away once I tighten up the muscles. Doc says I can drop the crutches as soon as I am comfortable with walking/balance. I think I’ll return to the radio station (I’ve been back on air since Day 11 post op) once my crutches are no longer necessary. Hopefully it’ll only be another week or so. I’m going to let physio make that call.
In other words: I’m healing well and am rather unremarkable, which (in medicine, I think) is a good thing. My next apt. and next blog update comes at the end of June, four weeks from today. Stay tuned.
In need of spoons: the spoon theory & me
I’ve had rheumatoid arthritis in every joint (excluding my spine) from my eyes to my toes since I was 18 months old. I’m 33 now with two young kids plus a full time job.
I. Am. Tired.
My son started school this year and I have had one virus or another since September.
In addition to my Enbrel (for RA) I take iron, b12, magnesium and Tylenol daily. Lately, I’ve been wearing my air cast to help put pressure on my aching ankles.
This is typical RA stuff with some new, unappreciated but “normal”, side effects. A few months ago while investigating some abnormal blood work, docs came to the conclusion that I am chronically fatigued due to the arthritis now targetting my blood.
I didn’t even know this was a thing!
Web MD will tell you that is is, in fact, a thing.
If it’s not enough, me saying “I feel like garbage” then feast your eyes on the scientific (hematology reports) proof!
…So for half a year or more, I’ve been more tired than I’ve ever been and it’s just “normal”.
It’s my normal.
The blessing and curse of arthritis is that tomorrow is uncertain; could be an “up” day, a “down” day or… “normal”… where 10 hours plus of sleep at night doesn’t leave you feeling rested. Every tiny thing becomes a major, multi-faceted task. Putting on your winter boots is enough to have you passing out from sheer exhaustion.
I’ve never related to a description about my life and energy levels more than that expressed as the “Spoon Theory”.
This infographic very accurately conveys what my ultra-fatigued body & mind struggle to. I’ve actually seen it and shared it on social media before, however new challenges brought me back to this same image. I even emailed it to my boss AND to my partner this week; two (very different) people who, I feel, need that missing perspective RE: my day to day functioning and limitations.
If you’ve ever seen me in a “down” swing & ask “what can I do to help?”, simply read and try to absorb the above “Spoon Theory”.
Asking how to help is very thoughtful, and appreciated, but since there is not a lot physically you can do to help me (most of the time), reading the super quick infographic posted above would mean the most.
Knowledge is power! Understanding is medicine! Thanks for reading this!
Bluesfest 2018 wrap-up
I have had issues with Bluesfest in the past. Mostly just a rough run in with some security staff who poorly handled my request for assistance (as advised by police) RE: accessibility needs. It’s old news. I’ve learned from that run-in and I hope Bluesfest and their subcontracted workers have, too.
I did not attend the music festival last year so this time around, I didn’t want to miss out! Despite what happened in 2016, I 100% do not hold a grudge against what I consider to be one of the most fun times in Ottawa. I had to go.
Beck, Sturgill Simpson, The Strumbellas, M. Ward and the Foo Fighters (to name a few) were all top notch.
Lines were lengthy to get in but moved very quickly. I did not require assistance with the festival’s A-Team (accessibility volunteers) this year, though I have heard through a few friends that they were very helpful. This is obviously great news!
I also noticed that a few music lovers with accessibility challenges had some struggles with Bluesfest reps, which can be wildly soul sucking (I know). To this, I wonder if Bluesfest would be interested in partnering with a person or team who’d be willing to prearrange accommodations for individuals with unique needs to ensure everyone is able to enjoy this glorious festival. A liaison who connects with the individual or their care worker who can get their needs met or heard prior to the event in order to best judge whether or not a day at Lebreton is feasible.
One woman who’s story really hit me, was Katie. I saw Katie’s story unfold on Twitter. A stage 4 cancer patient desperate to see the Foo Fighters was allegedly told it wasn’t a good idea for her to attend as she could not be promised an accessible place to sit, nor access to her vehicle should she become overwhelmed or need medicine.
Another person who voiced her concerns via Twitter was a young woman named Samantha. Samantha, again, had very unique issues holding her back but she didn’t want to miss her favourite act, Greta Van Fleet. Luckily, she ended up being able to make it after making some contact with the group (via social media).
Many friends have reached out to me personally asking for guidance when it comes to Bluesfest’s accessibility. I never did get an apology or answers of any kind... I don’t need or really ever expect that. What satisfies me is hearing about the positive changes that have been made and are continuing to be made. I have faith that people want to help. No one wants to put other people down. Music is what unites us. It shouldn’t discriminate.
When a friend (who’s young son needs assistance getting around) asked me if I knew of any parking allowances or accessibility aids that might help her family have a carefree evening at Lebreton. I sent her some links but decided to go the extra mile to ask questions in person (of BF staff and War Museum reception, for on site parking).
I live close to the grounds and now, with my motorcycle, it is very easy to scoot somewhere and ask questions without really leaving the bike!
I spoke with two security members (same company from 2016) who were very understanding with my questions & why I was asking them. They said that the family could drive in through the gate to have their son (and a parent) dropped off in a non stressful way right by the front gates. They would have to do it pre-5pm as the roads close, but HEY! That’s something, right?
An accessible drop zone, that would be huge.
Absolutely huge.
For persons who do not have accounts with ParaTranspo (which can be tricky to set up, especially for just one event/outing), some understanding and cooperation with Bluesfest regarding a hassle free drop off/pick up zone would be incredibly helpful.
How do you ensure this area doesn’t get abused? A liaison working with the accessibly challenged AND the festival would have it all planned out ahead of time.
While I understand that many persons with accessibility issues have deeply unique and possibly intersecting ailments, I want to believe that what is being done to accommodate such individuals could go further. Some people will not be able to attend. I get it. Some people could attend, but need help planning their day/night out to ensure the best chance of success.
Let’s help everyone enjoy this great festival.
Furthermore, I helped myself out by buying one of these inflatable couch thingies which is very awkward and embarrassing to set up but once inflated, it provided hours of comfort and helped me rest up for maximum fun (and the walk home). If you have rheumatoid arthritis or an ailment that makes walking/standing hard, these inflatable thingies are super compact (when deflated), lightweight (less than 1kg) and very comfortable (the brand I got is Vansky). A newfound festival staple!
STANDOUT MEMORIES from this year: the additional toilets are great! Noticed heightened security and a larger police presence (IMO: also great) and Beck. Wow, Beck was gooooood.
Thanks for another year of big names playing in our backyard, Bluesfest. Til we meet again.
*July 15th: Originally posted from my phone, will likely undergo format editing to add more context and style.
**July 16th: Has been edited to include multimedia and direct links to sourced content.
Aurora's Birth Story
This pregnancy was similar to my last, with little Everett born January 2015. Long, hard and gross. Very gross. I think I was sicker than I've ever been with little R in my tummy. I was hospitalized (briefly) with strep throat and had countless viral infections (mmm... pink eye, multiple times). Happy to say little R made it through and appears to be one happy and healthy babe, but we're skipping ahead here...
Unlike with Everett, Aurora was a planned baby. Ryan and I knew we wanted another child. Our families knew. Work knew. It was thoroughly planned and lucky for us, it didn't take long to conceive. I'll admit it: a planned pregnancy is a little less exciting than an unplanned one! I had been taking the vitamins, laying off the sauce and habitually peeing on sticks for a couple months before the wonderful confirmation came.
Like I said before, the actual pregnancy on me was rough but since baby was doing okay in my belly the doctor thought that attempting VBAC (vaginal birth after C-section) might be a good idea. It is said to lessen recovery time among other things. Though I wasn't super into the idea of VBAC based on what had happened during Everett's birth (emergency C-section/a whirlwind story), the idea of going for it naturally was still somewhat appealing and a shortened recovery time was definitely up my alley. I did have another baby (Everett, 2 years and 2 months) at home, after all.
We had discussed this early on and I had months to do some research and really make an informed decision. All the while, I was working full time. I know, I know. I work on the radio. It's not a physically intense job by any stretch but believe me... When you're exhausted, your brain & mouth don't tend to work as well as they used to and I was exhausted! Sure beat being unemployed though - as was the case when I was preggo with E. That was another level of stress I'm very happy I didn't have to deal with this time 'round.
“Birth is a trip. It’s a mental, physical and emotional journey that is personal to every person who experiences it first hand.”
I stopped working at the end of February. The plan was to schedule a C-section but to be open to VBAC if I went into labour early and things were looking good. Baby was measuring big (85th percentile) near the end which made the possibility of delivering her naturally seem very, very frightening for me. I'm little and she, like her brother, was BIG.
Nearing my C-section date I got very "inside my head" about all the things that could go wrong. I was thinking a lot about death; what if she didn't make it? What if I didn't make it? What if we both died? I was also worrying a lot about how this new addition to the family was going to affect little Everett. My first baby! Our little surprise who quickly became my whole friggin' world; how was he going to react to a new baby? Would I love him less? How could I make sure everyone got the right amount of love and attention?
So many unanswered questions and I was also freaked out about going into labour naturally and having to experience a vaginal delivery I didn't really want to have but does choosing a repeat C make me lazy? A bad mom? Am I robbing baby of a natural entry into this life? Seriously. These are the thoughts that were going through my mind which is why, nearing her arrival, I blocked out all baby talk. My apologies to those of you whose text messages and e-mails I didn't return.
March 20th... the wait is over.
Ryan and I headed to the hospital for an 8AM check in. While waiting for a room in Labour and Deliv. we bumped into the OB who'd be delivering our baby. Shout out to Dr. Garber, by the way, who was totally right about a scheduled C-section being a wildly different experience than an unscheduled or emergent one. He was on his way to deliver a baby (via C) the hard way. That news kinda helped to calm my nerves. I made it through a difficult C with Everett, so today should be a slice of cake, right?
Velia was the first nurse who helped us out once we made it to the pre-op/waiting room. She is really awesome and I told her about this blog so "HI VELIA - If you're reading this - you were one of the best parts of our journey!" I got a little queasy and had to lay down when the IV went in. Yes, I hate needles. Muchly.
8AM... 9AM... 10AM... we were joined by another couple (separated by a curtain) awaiting their C-section. Knowing other people are undergoing the same scary thing as me has always been something I found calming. I was also watching the clock because I had asked my coworkers at the radio station to put on a special song for Aurora's arrival, scheduled for sometime between 12PM and 1PM.
Shortly after 12PM we were escorted into the OR. Well, I was. Ryan had to wait until the anesthetist said it was okay. I've never WALKED into an operating room before so this was a first! The room was intimidating to say the least but I knew I wasn't the first who'd be experiencing this today. Shortly after hopping up onto the bed, I asked the medical staff to tune the radio to 106.1 CHEZ. You see, during Everett's birth I asked the same and got to rock out to an epic playlist during his spontaneous arrival. I was really into the music and not working for Rogers Radio at the time so it was quite the keepsake when Robin (Harper) and Steve (Colwill) answered my request for the playlist.
You don't see much when you're lying there so it was very nice when Ryan was let in. It was also super nice to know the person heading the surgery! Last time was a major blur - it all ended well, but it was really scary in comparison.
Everything below my breasts was warm and fuzzy and then completely numb. The time between going numb and the countdown to baby's first cry I find the most intense... You know it's ON and your life's going to change within the next 30-45 minutes.
There was a lot of pushing, pulling and talking with the staff. Everyone in there was great and, just like I told them pre-op, I forgot most of their names. Except Heather! Heather was there during E's delivery and she actually remembered me thanks to the radio connection.
Aurora "Rory" Stardust joined the outside world on March 20th at 13:13 weighing 8lb 6oz to U2's New Year's Day.
Her brother, Everett was born January 9th at 11:11 weighing 9lb 6oz to AC/DC's Dirty Deeds (Done Dirt Cheap).
The whole procedure was a truly great experience. She came out a beautiful, healthy baby girl and I managed to pull through okay. There might be some scar tissue ickiness going forward with it being my second C-section so this will be my last birthing rodeo. Like - FOR SURE.
Everything I was told about scheduled C-sections was absolutely true. It was a cool, calm and collected experience - POST OP. Prior to, I was anything but cool, calm and collected. Birth is a trip. It's a mental, physical and emotional journey that is personal to every person who experiences it first hand. I dealt with it on my terms this time and am absolutely grateful to the staff at the Civic Hospital, Dr. Garber and his team, Velia (that heated blanket you gave us in recovery is possibly the greatest invention ever) and the staff in the Mother Baby unit who took such stellar care of us.
Friends and family - thank you for the support you've given us over the past several months. Thank you for allowing me to ignore you, to hermit and to have the experience I wanted to have. I put myself (and baby) first and highly recommend you do the same if you are on or planning to begin your own birth journey.
A special shout out to Robin and Jacki from CHEZ for sending me Rory's playlist which you can see by CLICKING HERE.
Being asked to PROVE a disability is like being punched in the face.
TL;DR: Accessibility Policy of local music festival needs revision to avoid failing those with "invisible" disabilities.
I want to approach last night's personally humiliating situation with a caring and understanding disposition. I mean, maybe people fake handicaps to get special treatment? That's really unfortunate for people like me who have a (sometimes) invisible disability.
I do not have a ParaTranspo account and driving was not an option with the extreme road closures. My partner and I decided to Uber to the location but were dropped off fairly far away due to said closures. Hundreds of people including police and security witnessed me "doing my best" to walk (which was more of a painful hobble) from Scott and Preston down to Wellington.
Once there, we were told by a security person to talk with the accessibility volunteers working a gate that was fairly close by.
"Yes!" I'm thinking. "Finally, we can get in and sit down!" Because at 30, I have to sit down at a concert because it's too painful to stand for a length of time.
July 13 EDIT: We were instructed by a police officer and festival security to speak with staff at the Para Transpo/Accessible Entrance gate to gain nearer entry to festival grounds. At that gate, volunteers told us we couldn't enter without proving my disability. Look down and to the right for some of the things security asked me for. None of these items are listed under the festival's "Accessibility Policy" so there is no way for festival goers to know.
As a result, we had to walk to the main gate which was much further away. It was very painful.
I don't want to relive the experience that keeps playing over and over in my head this morning... It was humiliating, spirit breaking and poorly handled. This is the same shit I've been dealing with my entire life - "where's your proof"?
Being a meticulously over prepared person by nature, I wasn't expecting to be caught off guard. I checked and double checked what was OK to bring into the grounds. We Ubered as close as we possibly could to spare me pain and energy (I have a limit). I did not know I needed any of these extra things to prove what was last night (and what has been this last couple weeks) visible: my disability.
If it wasn't my favorite artist playing I would have left.
I was so upset that I cried while limping to the main gate.
I cried while security watched us enter the main gate.
I cried when my partner was approached by the leader of the accessibility services team with bracelets to the accessibility area for concert viewing as a way to try to make up for our shitty start to the night. (???)
Things security suggest I do:
- Bring them my handicapped parking permit
- Provide a doctor's note
- Call my manager, a coworker or former coworker to corroborate my claims of being physically handicapped
November 11, 2014: I was pregnant and unable to walk to the Remembrance Day ceremony - that didn't stop me from paying respect.
I'm 30 and have had Rheumatoid Arthritis for 28.5 years. I have good days and bad days. My body has been at war with itself, literally eating away at joints from my toes to my neck (everything except my back is affected). Not only does RA wreak having on bones and joints, the three decades of drug use has killed my stomach, esophagus and organs used to filter said medicines.
“Emotionally, it takes a toll. It is a pretty unreal feeling to wake up and learn that every day brings you new life lessons about what you are no longer capable of. Like, “Oh shit. I guess I can’t use scissors anymore!” That’s my reality.”
Despite spending a lot of my childhood in hospitals (CHEO, SickKids and Hugh McMillan) I didn't grow up focusing on the things I can't do. I focus instead on the things I can.
I can use my voice to ask YOU the public and concert/festival/venue organizers to be better at not making people with a lot going against us feel like you're against us, too.
Please clearly post or state that in order to benefit from an accessible entrance or accessibility services, one must bring proof of one's disability. In my case, going home to retrieve proof was not an option physically.